

"I was having the best summer of my life. Even better,
I was having the best year of my life. I was on my way to Malawi,
in southeastern Africa. On August 17, 2004, a sudden, catastrophic
illness struck and changed the course of my life. For the next
fifty-three days I was a patient in the critical care units
of three different hospitals. The diagnosis, a rare and most
often fatal autoimmune disease called giant cell myocarditis.
As of that date there had been fewer than two hundred reported
cases worldwide since 1905. What follows is a story about suffering
and coming face to face with death. It is a story about God's
amazing grace."



"Every time I fell asleep, I was surprised to wake up.
Most importantly, and I remember so clearly this absolute realization,
I knew that God was with me. When I closed my eyes, I saw a
textured, rust-colored curtain with a bright light behind it.
I had the sense that God was behind that curtain, His light
so intense, His power so immense that it could not be viewed
directly, but His presence was with me. When I focused on His
presence, I was truly not afraid. . . ."



"In the Critical Coronary Care Unit at NYPH/C, I was hooked
up to every conceivable form of monitoring device. As I lay
in bed I was the audience for a cacophony of bells, whistles,
alarms and pneumonic devices. I had arterial lines in my wrist,
the pacemaker / defibrillator device in my chest wall, intravenous
lines in my arms, PIC lines (type of IV) into my arm, central
venous pressure lines in my neck, a cardiac monitor on my chest,
oxygen in my nose and a Foley catheter in my bladder. I had
x-rays, blood draws, cardiac biopsies, ECG's echocardiograms
and MUGA scans (where they test heart function by injecting
a radioactive solution into a patient's veins and then take
pictures of the heart) - and some of those tests were repeated
daily. I look back on all this with wonder: so much danger,
so fast, from such a simple wish - to go to Malawi to help the
less fortunate. . . ."



"As I prayed, the hands on the clock moved slowly. I opened
my eyes and watched the lights on the George Washington Bridge.
The bridge looks to be made of fine crystal when it is all lit
up. . . ."



"When you're a patient in a hospital, two things happen;
time stands still and you lose control over everything. Illness
takes away most of your control over your life, hospitalization
takes away the rest. . . ."



"I lay in my bed in CCU wondering if I would ever feel
the warmth of sunshine on my skin or a gentle breeze on my face.
I thought, so this is what it's like to be dying. I didn't expect
it to happen so soon. . . ."



"Recovery is an amazing process. As my body and my spirit
healed there were so many firsts, so many milestones, all duly
noted and lifted up in prayers of thanksgiving. My first tennis
game, my first Pilates class, my first dinner out, my first
trip to the City by myself - all were new things accompanied
by both fear and bravado; all were followed by a sense of newfound
independence. . . ."